After looking for what could be causing my symptoms and coming across a website called Healing Breast Implant Illness , I joined a Facebook group (Breast Implant Illness & Healing by Nicole) of likeminded women. At the time I joined in March 2017 it had roughly 18,000 members. As of October 2017 it is over 25,000 women and growing quickly. 

What you will find in the group are tens of thousands of women of different demographics (age, ethnicity, location, pre-kids, post kids, genetics) who all have the same symptoms that occurred after implantation, who have been unable to find answers through the traditional medical system, are routinely told they are fine or given diagnosis for other conditions with treatment that offers no improvement or reprieve from their ailments, yet they are getting progressively sicker and the only common denominator between all of us is that we have breast implants and are (primarily) female. 

Thousands of women have bravely shared their stories of explant. Some women notice immediate improvement of their symptoms, some improve then worsen before improving again, others actually felt worse after explant for a while before improving, but the majority of these women allege feeling near normal with 1-2 years of proper enbloc & total capsulectomy explant without replacement. The caveat is women who did not explant properly (enbloc/total capsulectomy - See Healing Breast Implant Illness for details) do not improve until a subsequent surgery that removes the capsule properly. 

Even though the similar stories and the explant successes allegedly ending the symptoms were compelling I didn’t buy in right away. I'm critical and ask many questions, preferring to see evidence/science based information than following here say and anecdotal information because I recognize the power of the placebo affect. I also wasn't prepared to just rush into a major surgery without feeling confident in my decision. In fact I restarted a rigorous fitness and health regime in March 2017; really zoning into it, sticking to a rigid balanced diet based on Health Canada nutrition guidelines, drinking lots of water, minimizing sugar/caffeine, and getting enough zzzz’s. While this improved my energy levels slightly during the day it still didn’t take away the fatigue or other symptoms. In fact by September 2017 my symptoms have actually worsened and new symptoms are appearing.

I began to research the available information on the FDA. I wanted to disprove the idea that explants were the cause of my problem or that explant would make these symptoms go away. 

 

It have literally spent months pouring through 100’s of pages. There is a combination of things but for me these were the game changers that made me sick to my stomach:

 

  1. The FDA and implant manufacturers admit that all implant shells have “bleed.” What this means is that material of the shell is porous and material can travel both into the implant and out of the implant.​​ They acknowledge the "bleed" of platinum in both saline and silicone implants.

  2. The FDA recommends but does not require implant manufacturers to perform heavy metal analysis of implants shells for (wait for it): LEAD, ARSENIC, PLATINUM, BARIUM, TIN, and other KNOWN CARCINOGENS used to make implants. You will also find the list of the heavy metals used in your implants by referring to the Summary of Safety & Effectiveness Data for your implant/manufacturer.

  3. The FDA recommends regular MRI’s to detect silent ruptures and states that all ruptured implants should be immediately removed

  4. The FDA states that ALL implants come with a higher risk of a rare implant related ALCL-BIA lymphoma (cancer), textured have the highest occurrence, however there have been instances in smooth silicone and they cannot rule out that saline may also have a higher risk because they don't have all the data.

  5. The FDA admits that the current research/studies are inadequate and need to be longer term, they base the claim to safety on the fact that studies haven't actually been done to look at the long term affects. Plausible deniability. The onus is placed on women suggesting we are informed enough to decide for ourselves with the limited data available.

  6. Allergan's study showed a significant increase in adverse events (including reports of CTD) after 6 years post implantation

  7. Ruptured implants, some are old and some are very new.. but those cohesive gummy bear implants that are supposed to maintain their cohesiveness and not leak or liquify? This is what they ACTUALLY look like after they’ve spent time in your body and ruptured….. Have saline? Saline implants are still made of the same silicone shell and heavy metals as silicone implants, and they are compromised often enough with mold, and that is what they could look like or leak into your body..

  8. FDA admits that extra capsular rupture could result in silicone migrating to other parts of the body including lymph nodes and other organs and removal may not be possible.

  9. FDA clearly states over and over that implants are not lifetime devices and that the longer you have implants the more likely you are to experience complications or adverse events. (If theses are safe then why does risk increase with time?)

  10. The Facebook group. The stories from women and even more compelling were the photos. I saw women after women take  before explant face photos and after explant.... All I can say is that the photos speak for themselves and are very compelling. How could women consistently look years younger and healthier after removing implants, many within mere hours or days of surgery?

Please follow my blog for updates on my symptoms, physical appearance, etc as I head towards explant on Dec 18, 2017.

See the literature for yourself, direct from the FDA and manufacturers. I am adding more info, most of the information is geared towards the specific implants I have had, however, I am in process of accumulating as much information from the regulatory bodies as possible.

the why.

Breast Implant Illness Awareness

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My Breast Explant Journey

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